Problematic aspects of faecal incontinence according to the experience of adults with spina bifida

Author： Johnsen Vigdis   Skattebu Eli   Aamot-Andersen Astri   Thyberg Mikael  

Publisher： Medical Journals Limited

ISSN： 1650-1977

Source： Journal of Rehabilitation Medicine, Vol.41, Iss.7, 2009-06, pp. : 506-511

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Abstract

Objective: To describe problematic aspects of faecal incontinence according to the experience of adults with spina bifida.Design: Qualitative interview study.Subjects: Eleven adults with spina bifida and bowel problems.Method: Semi-structured open-ended interviews and qualitative analysis.Results: Problematic aspects were related to participation in terms of time consumption, communication, social isolation, love and sexuality, and accessibility. Also, to a sense of helplessness in terms of panic and worry, to a sense of shame in terms of impurity, social acceptance and self-image, and to bowel function in terms of decisions about colostomy, voluntary constipation, and changing patterns.Conclusion: The results reveal aspects relevant to supporting clinical practice and suggesting issues for questionnaire studies.

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