The Connected Self
：The Ethics and Governance of the Genetic Individual
( Cambridge Bioethics and Law )
Publication subTitle ：The Ethics and Governance of the Genetic Individual
Publication series ：Cambridge Bioethics and Law
Author： Heather Widdows;
Publisher： Cambridge University Press
Publication year： 2013
E-ISBN: 9781316896136
P-ISBN(Paperback): 9781107008601
P-ISBN(Hardback): 9781107008601
Subject： R-052 Medical Ethics
Keyword： 法律
Language： ENG
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Description
Heather Widdows suggests new ethical frameworks for genetic governance, to replace those that offer little protection and permit significant injustice. The genetic self is the connected self. Dominant ethical frameworks – particularly those of choice and consent – fail to recognise this. Accordingly, ethical practices offer little protection and permit significant injustice. New frameworks of ethics and governance are needed which respect relationships and groups as well as common and public goods. The genetic self is the connected self. Dominant ethical frameworks – particularly those of choice and consent – fail to recognise this. Accordingly, ethical practices offer little protection and permit significant injustice. New frameworks of ethics and governance are needed which respect relationships and groups as well as common and public goods. Currently, the ethics infrastructure – from medical and scientific training to the scrutiny of ethics committees – focuses on trying to reform informed consent to do a job which it is simply not capable of doing. Consent, or choice, is not an effective ethical tool in public ethics and is particularly problematic in the governance of genetics. Heather Widdows suggests using alternative and additional ethical tools and argues that if individuals are to flourish it is necessary to recognise and respect communal and public goods as well as individual goods. To do this she suggests a two-step process – the 'ethical toolbox'. First the harms and goods of the particular situation are assessed and then appropriate practices are put in place to protect goods and prevent harms. This debate speaks to core concerns of contemporary public ethics and suggests a means to identify and prioritise public and common goods. 1. The individual self and its critics; 2. The individualist assumptions of bioethical frameworks; 3. The genetic self is the connected self; 4. The failures of individual ethics in the genetic era; 5. The communal turn; 6. Developing alternatives: benefit sharing; 7. Developing alternatives: trust; 8. The ethical toolbox part one: recognising goods and harms; 9. The ethical toolbox part two: applying appropriate practices; 10. Possible futures. 'Widdows' argument … not only clearly demonstrates the need for new ways of thinking about contemporary issues in genetics and genomics, but also highlights the ways in which ethics itself co-evolves with science.' Ruth Chadwick, Distinguished Research Professor, Cardiff University and Director, Cesagen 'If bioethics is to be less blinkered, it needs a new approach - one that collects the required 'tools' and then applies them in a way that is responsive to the full range of material harms and goods. The Connected Self is a compelling read.' Roger Brownsword, Kings College London and Chair, UK Biobank Ethics and Governance Council 'With a battery of philosophical arguments, Widdows soon convinces the reader that our current ethical framework, the choice model, has to go … Informative, scholarly and yet extremely accessible.' Lisa Bortolotti, Birmingham University 'In setting out how genetics makes ethical individualism redundant - itself an important and timely argument - Heather Widdows at the same time puts neo-liberal 'morality' firmly in its place.' Bob Brecher, University of Brighton 'Provides a strong and urgently needed call to 'clean up our act' as regards the ethical governance of genetics … Reading this book reminded me why I became an ethicist.
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