Better Living With Dementia ：Implications for Individuals, Families, Communities, and Societies

Publication subTitle ：Implications for Individuals, Families, Communities, and Societies

Author： Gitlin Laura N.;Hodgson Nancy A.

Publisher： Elsevier Science‎

Publication year： 2018

E-ISBN: 9780128119297

P-ISBN(Paperback): 9780128119280

Subject： B84 Psychology;R3 Basic Medical

Keyword：基础医学,心理学

Language： ENG

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Description

Better Living With Dementia: Implications for Individuals, Families, Communities, and Societies highlights evidence-based best practices for improving the lives of patients with dementia. It presents the local and global challenges of these patients, also coupling foundational knowledge with specific strategies to overcome these challenges. The book examines the trajectory of the disease, offers stage-appropriate practices and strategies to improve quality of life, provides theoretical and practical frameworks that inform on ways to support and care for individuals living with dementia, includes evidence-based recommendations for research, and details global examples of care approaches that work.

Weaves research evidence and theories with practical know-how
Identifies support strategies for home, community, and health care settings
Provides stage-appropriate strategies relative to dementia severity
Summarizes dementia pathology, diagnosis, and progression
Considers the changing needs of both the individual with dementia and family and formal caregivers
Offers evidence-informed recommendations for research, practice, policy, and how to make things better at home, in the community, in healthcare and service settings, and through national policies
Provides local and global exemplars of what works
Provides case vignettes to illustrate key points with real examples
Contains brief conversations wit

Chapter

Front Cover

Better Living With Dementia

Foreword

Preface

Acknowledgments

Introduction: A Framework for Understanding Impacts of Dementia and Supporting Quality of Life With Disease Progression

Why Care About Care?

The Numbers Imperative

The Disease Burden Imperative

The Economic Imperative

The Moral Imperative

Conceptual Framework for Dementia Care

Challenges

Roadmap

Key Points

References

Further Reading

I. About the Person Living With Dementia

1 How the Brain Is Affected

Pathophysiology of Dementia

Alzheimer’s Disease

Mixed Dementia

Vascular Dementia

Lewy Body Dementia

Frontotemporal Dementia

Does Etiology Matter?

The Challenge of Diagnosis

The Diagnosis Disclosure

Benefits of Early Diagnosis

Role of Biomarkers in Diagnosis

Fluid Biomarkers

Imaging Biomarkers

The Trajectory of Dementia

Changing Needs

Key Points

References

Further Reading

2 Lived Experiences of Individuals With Dementia

Principles for Understanding Lived Experiences

The Good Life Model

Differential Needs of People Living With Dementia

Needs by Disease Stage

Race, Ethnicity, and Culture

Age of Onset

Daily Challenges

Remaining Safe at Home

Managing Stigma

What Is Stigma?

Effects of Stigma

Research Needs

Strategies to Address Stigma

Disclosing Diagnosis to Family/Friends/Employers

Remaining Engaged in Meaningful Activity

Maintaining a Sense of Purpose, Control, and Agency

Practical Implications for Dementia Care

Key Points

References

Further Reading

3 Breaking the Cycle of Despair

Three Buckets of Research

Paradigm of Despair

Assumptions For Developing a System for Care and Supportive Services

Conclusion

References

4 Making Life Better for Individuals Living With Dementia

Treatment Goals

What Can We Do Now?

Pharmacological Treatment Options

Nonpharmacological Options

Cognitive Decline

Functional Decline

Behavioral and Psychological Symptoms

Activity as a Therapeutic Agent

Ethical Dilemmas Providing Care and Supports

Case Scenarios of Common Challenges

Why Individuals Living With Dementia Do Not Receive Evidence-Based Care, Services and Supports

Key points

References

II. About the Caregiver

5 Family Member as Care Partner

Who are family caregivers?

What Do Caregivers Do?

What Are the Consequences of Caregiving?

What Do Caregivers Need?

Research Implications

The Future of Caregiving

Key Points

References

6 How We Can Support Families

Assumptions for Providing Care and Services to Families

Pathways for Supporting Family Caregivers

Looking Backwards to Move Forward

Begin With Assessment

Evidence-Based Approaches: What Works?

Exemplars

Lessons Learned

Do All Caregivers Need Support?

Ethical Considerations

Key Points

References

7 Formal Caregivers: The Role of the Interprofessional Team

What is an Interprofessional Approach to Formal Caregiving?

Why Is Interprofessional Care Important?

What Skills Do Formal Caregivers Need to Practice as Part of an Interprofessional Care Team?

Conclusion

Key Points

References

Further Reading

III. About Living Environments

8 The Physical Home Environment: A Neglected Therapeutic Context

Critical Drivers of Home as an Epicenter for Dementia Care

Impact of Home Environments on Daily Life

Home Safety Considerations

The Health Provider Perspective

Environmental Assessments

Environmental Modifications

When to Stay Put and When to Leave?

Unintended Negative Consequences of Staying Home

Conclusion

Key Points

References

Further Reading

9 Living in the Community

The Need for Security and Belonging

Dementia-Friendly Communities

Examples of Dementia-Friendly Programs

Key Points

References

IV. About Social Systems and Policies

10 Services and Settings of Care

What Is Person- and Family-Centered Care?

Service Needs Across the Dementia Trajectory

Best Practices in Setting Design and Programming

Examples of Person-Centered Service Models

Care Management Models

Care Coordination

Transitional Care

Program of All-Inclusive Care for the Elderly

Conclusions

References

11 Global Efforts and National Plans

Dementia by the Numbers Globally

Global Disease Burden

National Plans and Their Impact

Gaps in Global Efforts

Key Points

References

Further Reading

12 Transforming Dementia Care

Movement Towards a Social–Medical Comprehensive Dementia Care Model

Individual Level

Caregivers

Living Environment

Neighborhood and Community

Health and Human Services

Strategies for Implementing Evidence

Strategies for Selecting Evidence for Implementation

Social Policy

Putting It All Together

Conclusion

References

V. Taking Action

13 Developing and Implementing an Action Plan

14 Putting It All Together: Synthesis and Future Directions

Index

Back Cover

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