Service Delivery Systems for Individuals with Intellectual and Developmental Disabilities and their Families Across the Lifespan ( Volume 54 )

Publication series :Volume 54

Author: Burke   Meghan M.  

Publisher: Elsevier Science‎

Publication year: 2018

E-ISBN: 9780128155172

P-ISBN(Paperback): 9780128150917

Subject: B84 Psychology;B842.1 认知;R3 Basic Medical;R73 Oncology

Keyword: 心理学,认知,基础医学,肿瘤学

Language: ENG

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Description

International Review of Research in Developmental Disabilities, Volume 54 shares the latest research on the interactions between families of individuals with intellectual and developmental disabilities and service delivery systems. Chapters discuss Strengthening service access for children of color with autism spectrum disorders, Assessing the service impact of early intervention on young children with IDD and their families, Family-professional partnership with refugee families whose children have disabilities, Post high school transition for individuals with Down syndrome, Supporting families and school professionals to be engaged partners in the transition to adulthood for young adults with disabilities, amongst other timely topics.

  • Provides the most recent scholarly research in the study of developmental disabilities
  • Contains a vast range of perspectives, with many topics covered
  • Presents an excellent resource for academic researchers

Chapter

One - Strengthening Service Access for Children of Color With Autism Spectrum Disorders: A Proposed Conceptual Fram ...

1. INTRODUCTION

1.1 Relationship Between Ethnicity and Socioeconomic Status

1.2 Factors Linking Ethnicity and SES for Children With ASD

2. BEHAVIORAL MODEL OF HEALTH SERVICES USE: A CONCEPTUAL MODEL FOR EXAMINING SERVICE ACCESS AND DISPARITY

2.1 Overview of the Behavioral Model of Health Services Use

2.2 Relevant Research on the Behavioral Model

2.3 Summary

2.4 Model of School-Based Service Access for Children of Color With ASD

2.5 Summary

3. CHARTING THE PATH FORWARD: A RESEARCH AGENDA FOCUSED ON UNDERSTANDING DISPARITIES IN EDUCATIONAL SERVICES ACCESS IN ASD

3.1 Social Concordance

3.2 Service Negotiation

3.3 Implicit Bias

3.4 Charting a Research Agenda

4. CONCLUSION

REFERENCES

Two - Family-Professional Partnerships With Refugee Families of Children With Disabilities

1. REFUGEES IN THE U.S.

1.1 Refugee Resettlement

2. FAMILY-PROFESSIONAL PARTNERSHIPS

2.1 Barriers to Partnerships Between Refugee Families and School Professionals

2.2 The Sunshine Model

3. SHINING A LIGHT ON THE RESEARCH LANDSCAPE

3.1 Principles of Family-Professional Partnerships

3.2 Partnership Activities

4. IMPLICATIONS

5. CONCLUSION

ACKNOWLEDGMENT

REFERENCES

Three - Supporting Students With Disabilities, Families, and Professionals to Collaborate During the Transition to ...

1. TRANSITION PLANNING PROCESS

1.1 Age-Appropriate Transition Assessments

1.2 Postsecondary Goal Statements

1.3 Transition Services and Activities

2. THEORETICAL SUPPORT FOR COLLABORATION DURING TRANSITION

3. POLICIES AND PRACTICES THAT IMPACT COLLABORATION AMONG STAKEHOLDERS

3.1 Student Engagement

3.2 Family Engagement

3.3 Interagency Collaboration

4. SEARCH AND REVIEW METHODS

4.1 Search Process

4.2 Vetting Process

4.3 Article Review Process

5. TRANSITION PROGRAMS SUPPORTING COLLABORATION

5.1 Commonalities Among Programs

5.2 Degrees of Collaboration and Student Outcomes Among Programs

6. IMPLICATIONS FOR PRACTICE

7. DIRECTIONS FOR FUTURE RESEARCH

REFERENCES

Four - Post-High School Transition for Individuals With Down Syndrome

1. INTRODUCTION

1.1 What is Transition?

1.2 Achieving Successful Transition to Adulthood

1.3 Phenotypic Approach

1.3.1 Individual Differences

1.3.2 Family

1.3.3 Education

2. TRANSITIONING TO ADULTHOOD WITH DOWN SYNDROME: CURRENT OUTCOMES AND POTENTIAL PREDICTORS

2.1 Community-Based Living

2.1.1 Factors Associated With Community-Based Living

2.1.1.1 Individual level factors

2.1.1.2 Environmental level factors

2.1.2 Summary of Empirical Findings: Community-Based Living

2.2 Post-Secondary Education

2.2.1 Summary of Empirical Findings: Post-Secondary Education

2.3 Employment

2.3.1 Factors Associated With Employment

2.3.1.1 Individual level factors

2.3.1.2 Environmental level factors

2.3.2 Summary of Empirical Findings: Employment

2.4 Community Engagement

2.4.1 Factors Associated With Community Engagement

2.4.1.1 Individual level factors

2.4.1.2 Environmental level factors

2.4.2 Summary of Empirical Findings: Community Engagement

3. CONCLUSIONS AND FUTURE DIRECTIONS

3.1 Post-High School Outcomes

3.2 Factors Associated With Post-High School Outcomes

3.3 Additional Future Directions

3.4 Conclusion

REFERENCES

Five - A Review of Supports and Services for Adults With Intellectual and Developmental Disabilities (IDD) and Thei ...

1. THE EVOLUTION OF COMMUNITY-BASED SUPPORTS

1.1 The Origin of Adult Services and Supports

1.2 Deinstitutionalization Outcomes

1.3 System Rebalancing

2. FAMILY SYSTEMS THEORY

3. CAREGIVING CONTEXTS AMONG FAMILIES OF INDIVIDUALS WITH IDD

3.1 Aging Caregivers of Individuals With IDD

3.2 Sibling Caregivers of Individuals With IDD

3.3 Cultural Contexts

3.4 Family Caregiving Outcomes

3.5 Physical Health

3.6 Psychological Well-Being

3.7 Finances Well-Being

3.8 Compound Caregiving

4. DISCUSSION

4.1 Contemporary Issues

4.2 Inclusion Is a Fundamental Human Right

4.3 The Transdisciplinary Nature of Aging and Disability

4.4 Family Advocacy

4.5 Ongoing Co-residence of Adults With IDD and Their Families

4.6 Individuals With IDD Who Do Not Receive Formal Services

REFERENCES

Six - Reconceptualizing Natural Supports for People With Disabilities and Their Families

1. UNDERSTANDING NATURAL SUPPORTS

2. HISTORY AND CONTEXT OF NATURAL SUPPORTS

2.1 Evolution of Supports for People With IDD

2.2 Evolution of the Role of Families and Supports

2.2.1 History of Supporting Families Movement

2.2.2 Natural Supports and Family

3. A FRAMEWORK FOR INTEGRATING SUPPORTS

3.1 Development of Charting the LifeCourse Framework

3.2 Theories That Drive the Framework

3.3 Principles of Charting the LifeCourse Framework

3.3.1 Person Within the Context of the Family and Their Community

3.3.2 Supporting Families' Informational, Socio-Emotional and Day-To-Day Needs

3.3.3 Holistic Focus Across Interconnected Life Domains

3.3.4 Trajectory for Enhancing Life Experiences

3.3.5 Integrating Services and Supports Across the Life Span

4. REFRAMING CHANGE TO FOCUS ON INTEGRATED SUPPORTS

5. CURRENT STATUS AND FUTURE DIRECTIONS FOR THE INTEGRATED SUPPORTS PARADIGM

6. CONCLUSION

ACKNOWLEDGMENTS

REFERENCES

Seven - Information and Referral Services in IDD: Toward Integrated and Comprehensive Services?

1. DISABILITY SERVICES IN THE UNITED STATES: MANY WEEDS SPROUTING

1.1 Description of Services

1.2 History

1.3 Disorganized and Uncoordinated Services

2. INFORMATION MOVEMENT IN LIBRARY SCIENCE AND I&R SERVICES

2.1 The Information Revolution and Library Sciences

2.2 Information and Referral (I&R) Services

2.3 Issues Pertaining to Disability I&R Information Providers

3. EXAMPLE OF A DISABILITY I&R SERVICE: TENNESSEE DISABILITY PATHFINDER

3.1 The History of Tennessee Disability Pathfinder

3.2 Larger, Disability-Related I&R Themes

4. THE FUTURE OF DISABILITY-RELATED I&R SYSTEMS

4.1 Promises

4.2 Remaining Challenges

5. CONCLUSION

REFERENCES

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