Autism Spectrum Disorders: Guidance, Research and Federal Activity ( Neurodevelopmental Diseases - Laboratory and Clinical Research )

Publication series :Neurodevelopmental Diseases - Laboratory and Clinical Research

Author: Gregory L. Campbell;Anthony O. Phillips  

Publisher: Nova Science Publishers, Inc.‎

Publication year: 2016

E-ISBN: 9781622571567

P-ISBN(Paperback): 9781622570768

Subject: R749.4 affective psychosis

Keyword: 暂无分类

Language: ENG

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Autism Spectrum Disorders: Guidance, Research and Federal Activity

Chapter

Environmental Factors

ASD and Vaccines

WHAT EFFORTS ARE UNDER WAY TO IMPROVE THE DETECTION AND TREATMENT OF ASD?

HOW CAN I HELP A CHILD WHO HAS ASD?

Understanding Teens with ASD

Preparing for Your Child’s Transition to Adulthood

Living Arrangements for Adults with ASD

CITATIONS

Chapter 2 AUTISM PREVALENCE: MORE AFFECTED OR MORE DETECTED?

REFERENCES

Chapter 3 PREVALENCE OF AUTISM SPECTRUM DISORDERS: AUTISM AND DEVELOPMENTAL DISABILITIES MONITORING NETWORK, 14 SITES, UNITED STATES, 2008

ABSTRACT

INTRODUCTION

METHODS

Study Sites

Case Ascertainment

Descriptive Characteristics

Quality Assurance

Analytic Methods

Evaluation Methods

RESULTS

Overall ASD Prevalence Estimates

Prevalence by Sex and Race/Ethnicity

Previously Documented ASD Classification

Special Education Eligibility

Intellectual Ability

Evaluation of Missing Records and Expanded ICD-9 Codes

Comparison between 2006 and 2008 Prevalence Estimates

Comparison between 2002 and 2008 Prevalence Estimates

Previously Documented ASD Classification: 2002, 2006, and 2008

DISCUSSION

Temporal Changes in ASD Prevalence

Variation in ASD Prevalence by Site, Sex, and Race/Ethnicity

Limitations

Future Analyses to Address Limitations

Ongoing Efforts

CONCLUSION

ACKNOWLEDGMENTS

REFERENCES

Chapter 4 THE NEW GENETICS OF AUTISM:WHY ENVIRONMENT MATTERS

REFERENCES

Chapter 5 2011 STRATEGIC PLAN FOR AUTISM SPECTRUM DISORDER RESEARCH

INTRODUCTION

Vision Statement

Mission Statement

Core Values

Crosscutting Themes

1. WHEN SHOULD I BE CONCERNED?

What Do We Know?

What Do We Need?

2011 ADDENDUM TO QUESTION 1: WHEN SHOULD I BE CONCERNED?

What Is New in This Research Area, and What Have We Learned ThisPast Year?

What Gaps Have Emerged since Last Year?

Research Opportunities

Short-Term Objectives

Long-Term Objectives

2. HOW CAN I UNDERSTAND WHAT IS HAPPENING?

What Do We Know?

What Do We Need?

2011 ADDENDUM TO QUESTION 2: HOW CAN I UNDERSTANDWHAT IS HAPPENING?

What Is New in This Research Area, and What Have We Learned ThisPast Year?

What Progress Is Being Made in Fulfilling Objectives?

Research Opportunities

Short-Term Objectives

Long-Term Objectives

3. WHAT CAUSED THIS TO HAPPEN AND CAN IT BE PREVENTED?

What Do We Know?

What Do We Need?

2011 ADDENDUM TO QUESTION 3: WHAT CAUSED THIS TO HAPPEN AND CAN IT BE PREVENTED?

What Is New in This Research Area, and What Have We Learned ThisPast Year?

What Gap Areas Have Emerged since Last Year?

Research Opportunities

Short-Term Objectives

Long-Term Objectives

4. WHICH TREATMENTS AND INTERVENTIONS WILL HELP?

What Do We Know?

What Do We Need?

2011 ADDENDUM TO QUESTION 4: WHICH TREATMENTS AND INTERVENTIONS WILL HELP?

What Is New in This Research Area, and What Have We Learned This Past Year?

What Gap Areas Have Emerged since Last Year?

Research Opportounities

Short-Term Objectives

Long-Term Objectives

5. WHERE CAN I TURN FOR SERVICES?

What Do We Know?

What Do We Need?

2011 ADDENDUM TO QUESTION 5: WHERE CAN I TURNFOR SERVICES?

What Is New in This Research Area, and What Have We Learned ThisPast Year?

What Gap Areas Have Emerged since Last Year?

Research Opportunities

Short-Term Objectives

Long-Term Objectives

6. WHAT DOES THE FUTURE HOLD, PARTICULARLY FOR ADULTS?

What Do We Know?

What Do We Need?

2011 ADDENDUM TO QUESTION 6: WHAT DOES THE FUTURE HOLD, PARTICULARLY FOR ADULTS?

What Is New in This Research Area, and What Have We Learned ThisPast Year?

What Gap Areas Have Emerged since Last Year?

Research Opportunities

Short-Term Objectives

Long-Term Objectives

7. WHAT OTHER INFRASTRUCTURE AND SURVEILLANCE NEEDS MUST BE MET?

What Do We Know, and What Do We Need?

Data Sharing

Biobanking

Surveillance

Communication and Dissemination

Research Workforce Development

2011 ADDENDUM TO QUESTION 7: WHAT OTHER INFRASTRUCTURE AND SURVEILLANCE NEEDS MUST BE MET?

What Is New in This Research Area, and What Have We Learned This Past Year?

Data Sharing

Biobanking

Surveillance

Information and Communication Dissemination

Research Workforce Development

What Gap Areas Have Emerged since Last Year?

Data Sharing

Biobanking

Surveillance

Communication and Information Dissemination

Research Workforce Development

Short- and Long-Term Objectives

RESEARCH RESOURCES

Government Resources

REFERENCES

Chapter 6 THE COMBATING AUTISM ACT:OVERVIEW AND FUNDING

SUMMARY

INTRODUCTION

THE COMBATING AUTISM ACT (CAA)

Surveillance and Epidemiological Research

Autism Education, Early Detection, and Intervention

Centers of Excellence in Autism Research, and Research Coordination

COMBATING AUTISM REAUTHORIZATION ACT (CARA)

FUNDING

AUTISM ACTIVITIES UNDER THE COMBATINGAUTISM ACT

Centers for Disease Control and Prevention (CDC)

Health Resources and Services Administration (HRSA)

National Institutes of Health (NIH)

OTHER FEDERAL ACTIVITIES RELATED TO AUTISM RESEARCH

Other HHS Agencies

Non-HHS Agencies

COORDINATION OF PUBLIC AND PRIVATE AUTISMRESEARCH FUNDING

Issues for Congress

APPENDIX. LIST OF ACRONYMS

End Notes

INDEX

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