Knowing One's Medical Fate in Advance

Author: Pfleiderer G.; Battegay M.; Lindpaintner K.  

Publisher: S. Karger AG‎

Publication year: 2012

E-ISBN: 9783805596503

P-ISBN(Paperback): 9783805596497

Subject: R395.1 medical psychology

Keyword: 医学遗传学,预防医学、卫生学,哲学、宗教,社会学

Language: ENG

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Description

Modern medicine is now in a position to make advanced prognoses that chart the entire course of illness and recovery. Paradoxically, this is coupled with a new dimension of uncertainty for the patient, i.e. coming to terms with discovering they have an increased risk of a particular disease and deciding what appropriate steps to take. In this publication, renowned experts in their fields discuss these issues. The certainty and uncertainty of one’s fate are discussed from both methodological and epidemiological perspectives, using examples of diseases for which treatment and prognosis have dramatically changed. Despite profound insights into the human genome, personalized genetically tailored medicine still lies in the future. Religious, spiritual and philosophical dimensions are discussed, as are the ways in which they may help people cope with these new insights into their future, e.g. the promise of an afterlife. This publication aims to bridge the different fields dealing with this area by addressing the challenges faced and encouraging dialogue. It will be of interest to all readers who deal with ethical problems of prognosis, particularly in medicine, as well as to theologians and sociologists.

Chapter

Introduction

Medical Perspectives

Evolving Therapy and Prognosis in HIV – How Knowing One’s Medical Fate in Advance Can Change Dramatically

Prognosis and Advances in Treatment

Treatment Goals, Cautious Prognosis, and Perceptions

Perception Models

‘Wunderbar’ - ‘Wonderful’

Continuing Developments

‘I Will Survive this Challenge’

Prognosis Outside of Europe

Acknowledgement

Questions and Answers

References

Related to Human Cognition: Is Personalization Feasible and Desirable?

Questions and Answers

References

Ethical and Juridical Perspectives

Ethical Decision-Making on Genetic Diagnosis Facing the Challenges of Knowing One’s Medical Fate in Advance

The ‘Informed Consent’ Model as the Key to Autonomous Decision- Making

Ethical Decision-Making Processes in Women in Conjunction with Prenatal Genetic Testing: an Empirical Study

Autonomous Decision-Making as a Liberal Slant on Shaping One’s Own Future – Consequences for Theory and Practice

Questions and Answers

References

Mastering Familial Genetic Knowledge: Shared or Secret? Issues of Decision-Makingin Predictive Genetic Testing

Huntington Again

Methodological Approach

The Story of Mrs Alberta – Our Overview

Biographical Approach: ‘Revelation’ by Familial Genetic Knowledge and Dissociation from the Parental Generation

Interpretative Phenomenological Approach (IPA) and Emerging Bioethical Issues

Conclusion

References

Predictive Medicine – Changes in Our View of Ourselves and Others

Introduction

Ambiguities in the Concept of ‘Menschenbild’

Predictive Medicine and the Image of Man – Has Anything Changed?

What Has Changed – From the Viewpoint of Subjective Rationality?

Does Patient Autonomy Imply a Right to Know?

Patient Autonomy as an Ideal

Which Principles Should Guide the Practice of Predictive Medical Information?

Provisional Conclusions

Questions and Answers

References

Current Challenges for the Law: Disclosure Dilemmas in Predictive Medicine

Introduction

Legal Framework in Switzerland

Concluding Remarks

Questions and Answers

References

Religious Perspectives

Fate and Judaism – Philosophical and Clinical Aspects

Introduction: Medical Ethics and Jewish Medical Ethics

Fate and Judaism

Summary

Questions and Answers

References

Further Reading

Modern Medicine and My Future Life: A Christian-Theological Perspective

Introduction: The Importance of Being Religious

Individual Life and Its Future in a Christian Theological Perspective

Some Consequences for Christian Bioethics of Individual ‘Future Life’

Predictive Medicine: Challenges to a Modern Christian Ethics of Individual Future Life

Questions and Answers

References

Karma, Contingency, and the ‘Point of No Return’: Predictive Medicine and Buddhist Perspectives

Knowing One’s Medical Fate in Asia?

The ‘Point of No Return’: Its Relevance for Predictive Medicine

Contingency and Karma—or Why Religious Specialists Compete with Medical Specialists in Forecasting ‘Medical Fate’

‘Knowing the Fate’? Tibetan Medical Scriptures on ‘Refusing Treatment’ of Terminally Ill

Predictive Medicine: Some Views of Buddhist Specialists

Questions and Answers

References

Author Index

Subject Index

Cover

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