Mapping the differences in care for 5,000 Spinal Muscular Atrophy patients, a survey of 24 national registries in North America, Australasia and Europe

Author: Bladen Catherine   Thompson Rachel   Jackson Jacqueline   Garland Connie   Wegel Claire   Ambrosini Anna   Pisano Paolo   Walter Maggie   Schreiber Olivia   Lusakowska Anna   Jedrzejowska Maria   Kostera-Pruszczyk Anna   Pol Ludo   Wadman Renske   Gredal Ole   Karaduman Ayse   Topaloglu Haluk   Yilmaz Oznur   Matyushenko Vitaliy   Rasic Vedrana   Kosac Ana   Karcagi Veronika   Garami Marta   Herczegfalvi Agnes   Monges Soledad   Moresco Angelica   Chertkoff Lilien   Chamova Teodora   Guergueltcheva Velina   Butoianu Niculina   Craiu Dana   Korngut Lawrence   Campbell Craig   Haberlova Jana   Strenkova Jana   Alejandro Moises   Jimenez Alatorre   Ortiz Genaro   Enriquez Gracia   Rodrigues Miriam   Roxburgh Richard   Dawkins Hugh   Youngs Leanne   Lahdetie Jaana   Angelkova Natalija   Saugier-Veber Pascal   Cuisset Jean-Marie   Bloetzer Clemens   Jeannet Pierre-Yves   Klein Andrea   Nascimento Andres   Tizzano Eduardo   Salgado David   Mercuri Eugenio   Sejersen Thomas   Kirschner Jan   Rafferty Karen   Straub Volker   Bushby Kate   Verschuuren Jan   Beroud Christophe   Lochmüller Hanns  

Publisher: Springer Publishing Company

ISSN: 0340-5354

Source: Journal of Neurology, Vol.261, Iss.1, 2014-01, pp. : 152-163

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