Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness

Publisher： John Wiley & Sons Inc

E-ISSN： 1365-2702|27|3-4|836-847

ISSN： 0962-1067

Source： JOURNAL OF CLINICAL NURSING, Vol.27, Iss.3-4, 2018-02, pp. : 836-847

Disclaimer: Any content in publications that violate the sovereignty, the constitution or regulations of the PRC is not accepted or approved by CNPIEC.

Previous Menu Next

Abstract

Aims and objectivesTo describe and explore the experience of healthcare encounters in families living with chronic illness.
BackgroundLiving with chronic illness is a family concern and often includes frequent encounters with healthcare professionals. These encounters affect how persons with illness and family members handle everyday life. Disease‐related explanations are perceived by healthcare professionals as being of higher importance than the actual experience of illness, even though patients are concerned with issues involving their everyday life.
DesignA descriptive design with a qualitative approach.
MethodsNarrative family interviews were conducted with twelve families, using a qualitative content analysis.
ResultsOne main category was indicated following analysis, specifically “The impact of an accompanying family member.” Additionally, three subcategories were revealed; “The importance of collaboration,” “Mutual understanding,” “A desire to be confirmed in one's illness”.
Conclusions and relevance to clinical practiceHaving a participating family member increased the sense of power in families during encounters with healthcare professionals. This participation constitutes a level of support, making it easier for families to handle everyday life due to illness. Family members are, in most cases, included in discussions and decisions, both before and after encounters, and it should be a natural for healthcare professionals to invite them to the encounter too. This is an offer that may not fit every family, but the person with illness or the family should at least have the opportunity to choose.

Related content

Families living with parental mental illness and their experiences of family interventions

By  

JOURNAL OF PSYCHIATRIC & MENTAL HEALTH NURSING, Vol. 25, Iss. 2, 2018-03 ,pp. : 69-77 (9)

John Wiley & Sons Inc

Access to resources Recommend Favorite

Positive Experiences of Encounters with Healthcare and Social Insurance Professionals Among People on Long-Term Sick Leave

By Müssener Ulrika   Festin Karin   Upmark Marianne   Alexanderson Kristina  

Journal of Rehabilitation Medicine, Vol. 40, Iss. 10, 2008-11 ,pp. : 805-811 (7)

Medical Journals Limited

Access to resources Recommend Favorite

Experiences of Giving Support

By  

JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, Vol. 11, Iss. 4, 2014-12 ,pp. : 293-301 (9)

John Wiley & Sons Inc

Access to resources Recommend Favorite

Deciding treatment for miscarriage – experiences of women and healthcare professionals

By  

SCANDINAVIAN JOURNAL OF CARING SCIENCES, Vol. 29, Iss. 2, 2015-06 ,pp. : 386-394 (9)

John Wiley & Sons Inc

Access to resources Recommend Favorite

Living with chronic illness in adults: a concept analysis

By  

JOURNAL OF CLINICAL NURSING, Vol. 24, Iss. 17-18, 2015-09 ,pp. : 2357-2367 (11)

John Wiley & Sons Inc

Access to resources Recommend Favorite